Alice Wong is a disabled activist, writer, editor, media maker, and consultant. She is the founder and director of the Disability Visibility Project, an online community dedicated to creating, sharing, and amplifying disability media and culture, and she is the editor of Disability Visibility: First-Person Stories from the Twenty-First Century. Wong is also the author of the memoir Year of the Tiger: An Activist’s Life. She has written about COVID and disability, and after a health crisis in 2022, a photo essay, and vital articles on the medical and health insurance industry, as well as her quest for care and independence, which echo what Spence experienced decades before, showing how much our health systems, and definitions of “health,” still need to change.
About This Site
A Picture of Health: Jo Spence, a Politics of Disability and Illness is a multi-pronged project curated by Kenny Fries and Elisabeth Frost.
In 1986 the British artist, educator, and activist Jo Spence (1934-1992) described the question fundamental to her work: “how to represent a body in crisis.” Spence’s work reveals powerful political and artistic responses to the experience of inhabiting such a body and is as timely as ever. This website places her work in the context of the lived experience of chronic illness and of contemporary Disability Arts.